What an unbelievable gift the NHS is. We’ve all needed it at some point and it has saved George on more than one occasion.

Thanks to all the brilliant staff who know us and have helped us along the way. Here’s to 70 more years!

I’ll be taking part in the ABP Humber Coastal Half Marathon on 16 September 2018.

I’m hoping to raise at least £250 to support North East Lincolnshire Down’s Syndrome Family Support Group – who have really helped us, George and lots of other local families.

Please donate to my JustGiving Crowdfunding Page and help make it happen:

https://www.justgiving.com/crowdfunding/philip-jones?utm_id=2&utm_term=Z9QYVeE5E

Thanks for your support.

We’re showing our support for World Down Syndrome Day by wearing odd socks today. Chromosomes are shaped “like socks” and people with Down’s Syndrome have an extra chromosome. Different is OK.

George was discharged today.

We’re cautiously optimistic that we don’t have a return trip to Sheffield too soon (as happened last October).

We’ll keep a close eye on him over the coming days and all of our fingers crossed he stays well.

Thank you for all your well wishes this past week or so!

George is getting better.

Three days ago his infection markers were over 250 and now they are 17.

I’ve finally got to cuddle him after four days at home keeping our eldest quarantined for chicken pox.

Our parents on both sides have stepped in to help us out (thank you parents).

Caroline has been patient and amazing. She’s not been home since 2017.

Sheffield is a three hour round trip.

The hope is as soon as George can come off the oxygen, he can be transferred back to Grimsby Hospital where he can finish his intravenous course of antibiotics and make a full recovery.

For now, I’m happy just to hold him.

We haven’t shared any pics of George this time he’s been ill as he looked so poorly it didn’t feel right, but we’re very proud to share this one now he’s improving so much.

He’s amazing.