Our little lad is 2 today.

I think back two years – how poorly he was and how shocked and frightened we were to discover he has Down’s Syndrome.

If I had a time machine, I’d travel back and reassure us all that everything would be OK.  That right there was a boy who’d make us proud and bring us joy every single day. 

Happy birthday George, from a family who love you very much x


Home at last

A week later, George (and Caroline) are home.


It was norovirus – and because of his stomach issues, the doctors had to be extra vidgilant for enterocolitis (which can get very serious very fast).  

He’s still on antibiotics for the next 5 days to make sure he is fully recovered.

George is tired and whittery, but he’s back where he belongs.

Home at last

Hospital Update

img_0107.jpgAfter a good night’s sleep, George looked a little better today and was well enough for us to break him out of the hospital for a push around the park.

He’s still very lethargic and in discomfort between pain killer doses but he’s down to one washout a day and the gut-targeting antibiotics are working.

His consultant will see him tomorrow morning and will hopefully give us an idea on when we’ll be able to take him home – when the antibiotics course is finished and he’s drinking and feeding himself again basically.

He’s a tough little man and loved more than ever.

Hospital Update

I spoke too soon

Soon after I shared that George was ‘on the mend’ yesterday, he took a turn for the worse (blame Friday 13th).


His stomach swelled up and he was in a lot of discomfort.

At midnight we were transferred by ambulance to Sheffield Children’s Hospital where he is now being treated for Enterocolitis

It’s an inflammation of the gut – often associated with Hirshprung’s disease which George had surgery for in early 2016.

It can be serious, but we’ve caught it quickly and treatment has started. We’re back doing rectal washouts again to relieve his intestines and he is on strong antibiotics. Looks like he will be in hospital for the next few days at least.

[I know the picture looks bad but don’t be alarmed;  he hasn’t had a head injury as well! Unfortunately the only place they could find a good vein for his drip was in his scalp so the bandage is keeping that in place and the splints on his arms are to stop him from pulling on all his wires.]

I spoke too soon