Getting there

George is getting better.

Three days ago his infection markers were over 250 and now they are 17.

I’ve finally got to cuddle him after four days at home keeping our eldest quarantined for chicken pox.

Our parents on both sides have stepped in to help us out (thank you parents).

Caroline has been patient and amazing. She’s not been home since 2017.

Sheffield is a three hour round trip.

The hope is as soon as George can come off the oxygen, he can be transferred back to Grimsby Hospital where he can finish his intravenous course of antibiotics and make a full recovery.

For now, I’m happy just to hold him.

Getting there

Better still

George had a settled night.

They’ve weened him off dopamine which was maintaining his blood pressure and have taken away most of the tubes and cannulas.

It’s fantastic news that his blood pressure is back to normal, this means he’s no longer in septic shock. He’s still having just a little oxygen, but it’s minimal so his breathing has vastly improved too.

He’s sore from having the ventilator down his throat but he’ll be given paracetamol regularly to make him comfortable.

Although we still don’t know the the underlying cause of the infection, his bloods show that his infection markers are coming down, so one of the many antibiotics are obviously working.

He will be moved out of Intensive Care and onto a regular ward today.

He’s an amazingly strong boy and we are so proud of him.

Better still

An improvement

George is no longer sedated and has had the ventilator removed. He’s come around a bit groggy and pulling at the various wires and tubes he’s attached to and generally getting himself in a tangle.

It’s nice to see him moving after two days sedation.

He’ll remain in intensive care with a one-to-one nurse who’ll ensure he’s monitored throughout the night and doesn’t disconnect anything.

Doctors are slowly weening him off drugs for his low blood pressure.

It’s all positive steps.

Thank you to everyone who’s shown such kind support since yesterday. It really cheers us up knowing you’re out there.

An improvement

A bad start to 2018

Poor George is back in Sheffield Children’s hospital.

He spent New Years Eve in Grimsby hospital with what looked like pneumonia and the onset of sepsis. The staff there at A&E were brilliant and started treatment for both straight away.

He wasn’t improving so just after Big Ben chimed in the new year, he was transferred to Sheffield.

On New Year’s Day, George took a turn for the worse and went into septic shock. He was rushed immediately into intensive care where they could sedate him and give him the additional support he needed.

He is still in intensive care now but is stable.

It’s a very worrying time but we are so thankful that he is at Sheffield and being looked after.

A bad start to 2018


Our little lad is 2 today.

I think back two years – how poorly he was and how shocked and frightened we were to discover he has Down’s Syndrome.

If I had a time machine, I’d travel back and reassure us all that everything would be OK.  That right there was a boy who’d make us proud and bring us joy every single day. 

Happy birthday George, from a family who love you very much x